Chapter 03

Where Inclusion Breaks: Breakpoints and intervention patterns across the disability ecosystem

Chapter 06: Time Horizons for Disability Inclusion – From Immediate Access to Long-Term Systems Change

Change in disability inclusion does not happen at a uniform speed, necessarily. Some priorities require immediate strengthening within existing systems, while others depend on longer-term institutional and narrative shifts. The three horizons framework helps locate these efforts across time: from access to formal recognition and services, to institutional pathways for inclusion, to systems integration and field leadership. Read this way, the horizon model is a map of overlapping responsibilities that must deepen together.

The Three Horizons framework offers a lens to understand this evolution as a set of overlapping and mutually reinforcing shifts in focus and ambition. Rather than moving on from earlier roles, ecosystem actors are required to operate across horizons simultaneously: strengthening existing systems, embedding inclusion within institutions, and enabling long-term alignment and leadership across the field. The cornerstones identified in this report act as pathways through these horizons, deepening inclusion for the future, while remaining grounded in present realities.

The Three Horizons of Disability Inclusion
  • Horizon 1: Strengthening Access to Existing Systems and Services The foundation of the ecosystem lies in formal recognition and access—legal entitlements, disability certification, service delivery, assistive technology, and rehabilitation support. These are not transitional activities; they remain essential for millions of people still outside the reach of even basic provisions. Horizon 1 focuses on strengthening reach, quality, and continuity—ensuring that existing systems work more effectively, even as the ecosystem builds toward deeper change.
  • Horizon 2: Embedding Institutional Pathways for Inclusion The next frontier is institutional. This requires moving beyond individual service delivery to embedding inclusion within how systems operate. It includes developing standards and protocols, advancing accessibility norms, enabling cross-sector coordination, and strengthening government partnerships. Horizon 2 focuses on building consistency and scale—shifting inclusion from isolated programs to practices embedded within institutions.
  • Horizon 3: Enabling Systems Integration and Field Leadership The long horizon requires two reinforcing shifts: strengthening field leadership and enabling systems integration. This includes shaping narratives and leadership-building disability-led networks, advancing representation, and influencing discourse—while embedding inclusion across systems through integrated policy, financing, data, and accountability mechanisms. Horizon 3 focuses on sustaining inclusion through alignment—where systems, leadership, and institutions move together toward long-term coherence. Taken together, the Three Horizons underscore a central insight of this report: the future of disability inclusion in India will be built not through the tension between immediate delivery and long-term transformation. Progress will be driven by actors and investments capable of working across horizons, responding to urgent needs while simultaneously building the institutional, systemic, and leadership foundations required for durable inclusion.

Supporting this mandate is not only a strategic imperative for the sector, but a necessary condition for achieving equitable and inclusive development at scale.

Please note: The Three Horizons Framework is a foresight model used to manage transformational change. Horizon 1 represents the current system and its declining relevance; Horizon 2 involves the “pockets of the future” or innovations that disrupt the status quo; and Horizon 3 envisions the long-term systemic shifts required for a sustainable future. Organizations use this to balance immediate needs with longterm field-building goals.

Annexures

Methodology Note

This report draws on a mixed-methods research design combining secondary research, primary qualitative inquiry, and a nonprofit diagnostic survey.

The secondary research included a review of laws, policies, schemes, judicial developments, published literature, and available sectoral data relevant to disability inclusion in India. This helped situate the study within the current policy and institutional landscape and informed the analytical lenses used in the report.

The primary research consisted of 23 semi-structured interviews with stakeholders from the disability ecosystem, including nonprofit leaders, disability rights practitioners, philanthropic actors, researchers, and other sector enablers. In addition, two FGDs were conducted with 9 nonprofit practitioners to deepen understanding of shared organizational realities, including collaboration, capacity constraints, and ecosystem gaps.

To complement the qualitative inquiry, Dasra administered the Disability NGOs Capacity & Ecosystem Diagnostic Survey, which was circulated online through Dasra’s networks as well as partner and ecosystem networks. It was designed as a structured diagnostic tool to gather information on organizational scale, budgets, geographic reach, leadership composition, disability focus, areas of work, collaboration patterns, operational bottlenecks, and short- and long-term capacity needs. Following final data cleaning, three duplicate survey responses were removed. The final analytical sample comprises 109 organizations.

The study used purposive and convenience sampling across its primary research components. As a result, the findings are indicative rather than statistically representative of the disability ecosystem in India. Organizations and actors that are smaller, less networked, more informally organized, less digitally connected, or based in remote or conflict geographies may be underrepresented

Limitations: While this research surfaces critical patterns, tensions, and operating realities across the ecosystem, several limitations must be acknowledged. First, the study may underrepresent smaller, informal, or less networked actors who often operate outside established visibility. Furthermore, the analysis maintains an implicit focus on civil society; consequently, the specific roles of the family, community, the state, and the market in ensuring disability inclusion have been explored only in a limited manner. Finally, the findings and interpretations may be influenced by our inherent bias and positioning as a sector intermediary within the philanthropic landscape.

Acknowledgements

This report was developed as part of HSBC India’s partnership with Dasra to strengthen the disability ecosystem in India through a landscape study, stakeholder consultations, a nonprofit diagnostic survey, and the design of a longer-term ecosystem-strengthening initiative. It builds on a shared commitment to examining disability inclusion not as a narrow sectoral concern, but as a structural question that cuts across institutions, lifecycles, and systems.

We are grateful to HSBC India for their support, partnership, and belief in the importance of investing in evidence, institutional strengthening, and long-horizon thinking for disability inclusion. We are especially thankful to Aloka Majumdar for her stewardship of this work and for helping anchor the report within a broader commitment to strategic, sustained action on disability inclusion. The research and report were led by the Research and Insights team at Dasra, in collaboration with Cohorts & Training, and Catalytic Philanthropy teams, with contributions spanning research design, stakeholder engagement, analysis, synthesis, and strategic direction. The broader project team and leadership team guiding this work included Neera Nundy, Deval Sanghavi, Ami Misra, Pratyaksha Jha, Yash Thakoor, Rukmini Banerjee, Arshiya Uraizee, Unaiza Rajan, Kavneet Kaur, Jija Dutt, Harshita Maheshwari, Shrestha Satpathy, Divya Puri, Jessica Bernard, Gaurvi Singhvi, and Ayush Mehrotra. We extend our sincere appreciation to the nonprofit leaders, disability rights practitioners, funders, researchers, intermediaries, and other ecosystem actors who shared their time, experiences, and reflections with us through interviews, focus group discussions, and consultations. Their insights made it possible to understand the disability ecosystem through the operational realities, tensions, and forms of care, translation, and continuity that hold it together in practice. The report also draws on the responses of 109 organizations that participated in the online survey, whose contributions helped anchor the analysis in patterns visible across the broader nonprofit landscape. We would like to extend our sincere gratitude to Atypical Advantage for serving as the accessibility consultant for this report and for their valuable guidance in helping make this publication more inclusive and accessible.

Above all, we acknowledge persons with disabilities, caregivers, and community actors whose lives, labor, and daily negotiations with exclusion sit beneath every institutional question this report asks. Even where they are not always directly visible in the research process, their realities shape the field, and their experiences remain central to any meaningful account of disability inclusion in India. We are conscious that this report draws on knowledge produced through lived experience, movement-building, practice, and long years of work across the ecosystem. We hope it contributes, in however partial a way, to efforts aimed at building a more accountable, inclusive, and dignified social order.

List of Sector Experts and Practitioners (A-Z)

  • Anjanaben Acharya, Ashirvad Viklang Trust Sayla
  • Archana Chandra, Jai Vakeel Foundation
  • Bashir Ahmad Lone, Voluntary Medicare Society (VMS)
  • Beverly Luis, Mann
  • Bhavana Mukherjee, ADAPT (formerly Spastics Society of India)
  • Bhumika Modh, Association of People with Disabilities (APD)
  • Birbal Prasad, Manav Vikas Jharkhand
  • DPK Babu, Akshay Akruti
  • Disket Angmo, Mann Talks
  • Dr. Aman Preet Kaur, Bajaj Finserv
  • Dr. Anita Limaye, Ummeed Child Development Center
  • Dr. Dipti Gandhi, Muskan Foundation
  • Dr. Koyeli Sengupta, Ummeed Child Development Center
  • Dr. Lakshmi Narasimhan, Banyan Academy of Leadership in Mental Health
  • Dr. N.S. Senthil Kumar, Association of People with Disabilities (APD)
  • Dr. Nandini Ghosh, Institute of Development Studies (IDS), Kolkata
  • Dr. O P Kulhari, CULP - Centre for Unfolding Learning Potentials
  • Dr. Pratima Sasindran, Gramin Shramik Pratishthan (GSP)
  • Gazala Paul, Paul Hamlyn Foundation & Samerth Charitable Trust
  • Jo Chopra-McGowan, Latika Foundation
  • Karthikeyan Ganesan, Sristi Foundation
  • Adv. Mrunmayee Rajabhau Jodh, Manav Vikas Foundation (MVF), Nagpur
  • Myroslava Tataryn, Disability Rights Fund (DRF)
  • Nargis Khatoon, Srijan Mahila Vikas Manch
  • Neha Soneji, Tech Mahindra Foundation
  • Nidhi Goyal, Rising Flame
  • Nipun Malhotra, Nipman Foundation & The Quantum Hub
  • Paul Ramanathan, SAMA Foundation
  • Payal Wadhwa, Jai Vakeel Foundation
  • Prashant Sude, GSP India Grameen Shramik Pratishthan
  • Prateek Madhav, AssisTech Foundation (ATF)
  • R.A. Gopal, Global Trust
  • Radhika Kannan, Miraiwala Health Initiative (MHI)
  • Richa Bhutani, Tata Institute of Social Sciences
  • Shamin Mehrotra, Ummeed Child Development Center
  • Shilpi Kapoor, BarrierBreak
  • Siddharth Agarwal, Upadhyaya Foundation
  • Sonali Saini, Sol's ARC
  • Srilakshmi Bellamkonda, Dr. Reddy's Foundation
  • Sudeep Goyal, Asha Ka Jharna
  • Sushri Sangita Deo, Sadbhabana
  • Subhojit Goswami, The Leprosy Mission Trust India
  • Usha V, Akshay Akruti

List of Survey Respondents (A-Z)

  • A Hand for Help Development Society
  • Aaina
  • Acc-Red
  • ACT2Enable Aadhaar Counselling and Therapy Council
  • Action for Autism
  • Amar Seva Sangam
  • Amhi Amchya Arogyasathi
  • Anushkaa Foundation for Eliminating Clubfoot
  • Arj Foundation
  • ARVI TRUST
  • Autism Welfare Trust
  • AWMH Maharashtra
  • Bijapur Integrated Rural Development Society (BIRDS)
  • Blink Foundation
  • Buzz Women
  • Calcutta Blind School
  • Centre for Community Initiative
  • Centre for Mental Health Law and Policy, Indian Law Society
  • Chehak Trust
  • CORD
  • Craftizen Foundation
  • CULP - Centre for Unfolding Learning Potentials
  • Dantan Manav Kalyan Kendra
  • Darbar Sahitya Sansada
  • Diocese of Varanasi Social Welfare Society
  • Dr. Anjali Morris Education & Health Foundation
  • Ekalavya Educational And Charitable Trust
  • EKTA
  • Evoluer Solutions
  • Future Hope
  • Ganpati Educational Society
  • Geohazards Society
  • Global Trust for the Differently Abled
  • Gramin Vikas Sansthan
  • Hind Yuva Shakti
  • Jai Vakeel Foundation & Research Centre
  • Jan Vikas Samiti
  • Jeevandeep Health Education and Charitable Trust
  • JYOTIRMAY NGO (Under the aegis of Lila K. Jagtiani Foundation)
  • Kalp Samaj Sevi Sanstha
  • Kandhamal Zilla Sabuja Vaidya Sangathan
  • Karnataka Hemophilia Society Davangere
  • Kaveri Counselling Empowerment & Gifted Centre
  • Kenduadihi Bikash Society
  • Krida Vikas Sanstha (Slumsoccer)
  • Lohardaga Gram Swarajya Sansthjan
  • Lok Kalyan Seva Kendra
  • Manav Vikas Foundation
  • Mitra Jyothi
  • Movement for Alternatives and Youth Awareness
  • Muskaan-PAEPID
  • Muskan Foundation
  • National Association of the Deaf
  • Naykshitij
  • NEAID
  • Odisha Rising Foundation
  • Prabhat Education Foundation
  • Pranjal Welfare Foundation
  • Pratham Education Foundation
  • Prerak
  • Prodigals' Home
  • Rainbow Special Education and Rehabilitation Foundation
  • RampMyCity
  • Raphael Ryder Cheshire International Centre
  • Rising Star Khilte Chehre
  • SaaD
  • Sadbhabana
  • Saheli HIV AIDS Karyakarta Sangh
  • SAMA Foundation
  • Samarthanam Trust for the Disabled
  • Samerth Talim Kendra Operated by Samerth Charitable Trust
  • Samhita
  • Sanchar AROD
  • Sangath
  • Sankalp Sanskritik Samiti
  • Santhivardhana Ministries
  • SARDS
  • Satya Special School
  • Service Initiative for Voluntary Action Trust
  • SEWA Punjab
  • Shanta Memorial Rehabilitation Centre
  • Shikshit Yuva Sewa Simiti
  • Sisu Vikas Samiti
  • Snehadhara Foundation
  • Sri Nrusingha Dev Anchalika Yuba Parisada (SNDAYP)
  • Srijan Mahila Vikash Manch
  • Sristi Foundation
  • Tamana
  • Team Vision Foundation
  • The Association of People with Disability
  • The Banyan
  • The Education Audiology and Research Society
  • The Leprosy Mission Trust India
  • The Stephen High School for the Deaf
  • The Victoria Memorial School for the Blind
  • Torchit
  • Udayan Care
  • Udbhav Vision Foundation
  • Ummeed Child Development Center
  • Umoya Sports
  • UNNATI - Organisation for Development Education
  • V Can Autism Foundation
  • Vidhi Centre for Legal Policy
  • Vidyaranya
  • Vipla Foundation (Save The Children India)
  • Vivekanand Lok Vikas Sansthan
  • Voluntary Integration for Education and Welfare of Society (VIEWS)
  • Voluntary Medicare Society (VMS)
  • Youth4Jobs Foundation

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